Friday, August 22, 2008

the state of me

I got this book last Monday and finished it today. For 11 days, I had a friend who completely understood what it was like to live with M.E. 

I will share an excerpt:

I’m always measuring out my energy behind the scenes, but people don’t see it. They see you at a party and think you’re fine, they don’t see you resting all day to be able to go, and being wrecked all the next day because you went. They don’t see you leaning on walls at bus stops because you can’t stand for more than five minutes. They don’t see how tired your arm gets after beating an egg. They don’t know you almost always have poison in your calves when you wake up. They don’t see you weeping because you’re so tired of it all. Last week, a nun with bulbous eyes called me a lazy girl because I was sitting down on the bus.
It's as though she's describing my life. If only there was a second book so that I could have my friend back. 

Onto arty things: I've finished altering my ball gown. I'm not happy with it at all but I have nothing else to wear. I was hoping to have completely transformed it but it didn't really work out that way. Of course, I will still show you photographs. I'll upload them on Sunday.

Other than the dress, I haven't been able to do much in the way of arty things because my energy has been consumed with packing. Only a few more days and we will be in our new house! I'm getting quite good at moving house now.


  1. i know what it's like what we hide people don't see. myself having C.M.T and sara and the grandsons also. so tireing feet,legs,arms etc.sometimes after going out can't wait to get home.we need sometimes have to hide the pain tiredness to get on with life come Lord JESUS COME but while i wait i get on and get the word out. pray you have a good week and with the move.

  2. this is a very powerful excerpt. so many people suffer every day and we may never see it. thanks for sharing.